Archive

Archive for September, 2010

Another Perspective

September 12th, 2010

What if my daughter wasn’t triggered by the main defining triggers in her life – home, family, Minneapolis?

That is the premise of Dr.Clancy D. McKenzie’s research.

He believes people heal, permanently by not being triggered repeatedly. Of course, it is more complicated and involved but I am curious what people think about his research.

A Psychological Basis for Biological Change
by Clancy D. McKenzie, M.D.

LECTURE – INTEGRATION OF PSYCHOLOGY AND BIOLOGY – PART I

A Review of Origin and Mechanisms, and
New Methods for Prevention and Treatment
by Clancy D. McKenzie, M.D.

LECTURE – INTEGRATION OF PSYCHOLOGY AND BIOLOGY – PART II


Uncategorized

Just Exactly What Is The Nature Of The Problem?

September 12th, 2010

I saw a new doctor last week.

I left the old practice which was convenient, right up the street and patronized by most of the neighborhood, because they were insensitive towards my daughter.

I called them after my daughter was bullied by a new young addition to their roster. I was told that I had to lodge a complaint through what sounded to me like a very cumbersome route. Human Services would get back to me. When a defensive woman called and asked just what was the problem, I said that the doctors at Isles Medical Group needed have training in dealing with people with mental health issues.

No, I was told, they do not – because they already have been trained.

“What was the nature of your daughter’s complaint?” She slammed my objection to my daughter’s treatment with a slight to my daughter – the implicit – Why can’t she speak for herself?

At my daughter’s appointment, the doctor had read the extensive mental health entries in her chart and then looked up and began pestering my daughter about her lack of friends, inability to exercise, joblessness and general lethargy. My daughter is cute. She dresses well, keeps clean and is articulate. I guess my daughter’s levelheaded image threw the doctor off.

“Well,” I continued with Human Resources, “Dr. Deborah Mague…”

She cut me off. “She is new and young. She should have been a good fit for your daughter.”

“She wasn’t,” I said. “She was mean and indifferent. And totally unaware of what it is to feel vulnerable.”

“Do you want to write a report?”

“No, I want to lodge a complaint.”

I don’t know what happened.  I never heard from them again.

I made an appointment with an integrative medicine doctor at the University of Minnesota and sat back to wait, hoping nothing went wrong during the intervening months.

My new doctor asked me if I meditated. She suggested that I visit a naturopath to help me wean off of a drug which I no longer want to take. (Evil Prevacid) She was happy that I have found some relief for back pain and my stomach issues with an acupuncturist and chiropractor. When it came time to leave she asked if I would stop by the lab to have some blood drawn. She thought it would be good to check my vitamin D level. No added expense of testing for something that I “probably wouldn’t medicate for anyway”.

I’ll take my daughter with me to the naturopath. Maybe we’ll wean off our meds together. Ha. Let me just ask around if any other neighbors have devised such a bonding experience with their daughters! “I’ll get off of Prevacid and you, dear daughter, can tackle that nasty habit you have with the benzodiazepines! It’ll be fun. We’ll do it together.”

Although we live next door to some pretty nice people, I wouldn’t actually do this kind of survey. Even the hint of an anomaly above the neck makes people nervous. A wayward eye, one that floats out of alignment,  is enough to cause people to get very interested in their shoes and back away. Image how they respond to a quirk they just heard about but can’t actually see? Those muffled exchanges at holiday parties- “I heard that she wasn’t doing very well.” With that, the rumor mill begins.

I don’t know exactly what people say about my daughter. My husband and I have been open with some and tight-lipped with others. But, when your daughter drops from the mainstream for as long as ours did, there seems to be a demand for an explanation. Which never really came from us – or her.

So, maybe my daughter will stick around and together we will heal certain aspects of ourselves together. The image of a perfectly normal family. Oh, but then again, aren’t we?

Uncategorized

Pulling Down the Veil and Cleaning Up My Mess

September 10th, 2010

I need to change the Goal of this Blog. I wrote it when I was still “following the doctor’s orders”. Unfortunately, it was copied for the description on the episode notes for the radio program which I was interviewed for this afternoon.

http://www.blogtalkradio.com/ajmaharipsychewhisperer/2010/09/10/mother-of-bpd-daughter-her-and-the-mental-health-s

I guess I will run into my old self here and there. I will clean up that mess slowly but surely…

I was thinking about this as it pertains to my daughter. When she first entered the psychiatric system we were uncomfortable, even shamefaced, when we were asked too many questions about her.  I often depended on the language of the psychiatric system. “She’s in treatment.” “She is dysfunctional and working on lifeskills.” “She is depressed.” “She is sick.” And, the worst, “She is mentally ill.”

Now, I don’t believe a word of it. I want to wipe the slate clean, fix what seems like a BIG mess, and start fresh with no history.

Can we embrace my daughter’s differences now and convince everyone else to do the same?

No. We have to teach by example.

I kept a veil up between everyone and our family for years. Yes, there was something going on. Look closely and you might barely make out the silhouette of the skirmishes, awkward postures or modifications that were draining our family. But, I was vigilantly improving the drape of the fabric and rearranging the lighting. No one was ever sure. Was it depression? Maybe. Or was my daughter just a girl with a lot of potential and too much at her disposal, too good at too many things to commit to anything? Floundering about before digging into life? A socially acceptable procrastinator?

The mystery around my daughter still exists. No one really knows where she has been or what exactly her life looks like.

I don’t think that we are any different from other families with mental health issues at home.

The difference is that I want to tear the curtain down. And, I want everything to be okay when I do.  But, I don’t trust society to be forgiving and kind. The stigma is not indelible but it is tough and stuck hard to her.

I want to send the word out, “Be kind. Allow for growth and change. Loose your preconceptions. Give my daughter room to be what she can be.”

I have to clean up my world and hopefully, the rest will follow.

Uncategorized

The Healing Touch

September 9th, 2010

My dog tripped and fell on his head. I was walking three dogs at the time. One was being held by a curious passerby while one was tracking a black cat sauntering across a field. The third was standing on his hind legs holding my thigh with his front legs and urging me with pleading eyes and little yips to go home. He was hungry.

At the exact same moment, he let go of the grip on my leg as the tracker lunged towards the enticing cat who was now sunbathing fifty feet away. The chihuahua was quickly placed back in my hands. I set her down among the escaping leashes.

The biker who had stopped and asked to meet the chihuahua said something like, “I think that sound was his head hitting the ground,” but, I was too focused on re-grabbing the leashes and keeping my eye on a frisky lab who was straining at the end of a leash to our left.

I got the three reins sorted out and started around the north end of the lake and towards home. Only, the hungry dog wasn’t moving. I looked down at his skinny Italian greyhound body. His back was bowed and his tail was hard against his stomach. His eyes were dark and glazed pools unfocused in their sockets. He was trying to walk except one leg kept jerking up and across his body. He looked terrified.

The other two dogs were paying very close attention. I lifted him up and tried to hold his convulsing body. His head kept flinging back over my elbow. I tucked him into my jacket and started running for home. The other dogs fell into step. At one point the other Italian greyhound’s leash was dragging behind us. He was in lockstep with me. Not even a squirrel running across his path would have distracted him.

I was scared, sweating and breathing hard by the time I reached the front door. Stewie’s body had stopped trembling and he was heavy in my arms. I didn’t know if this was a good sign – whatever happened had passed  - or a very bad sign.

I burst through the door and called out for my daughter.

“Come help me! Stewie hit his head and had a convulsion!”

She jumped down the stairs on her one good foot and placed her small strong hands along his back.

I felt relief; he was in good hands.

My daughter has always had confident strong hands. They hold her intention even when her mind is indecisive. They surprise me with their deliberateness and I love to watch them. They are small. She chews her nails so the tips of her fingers are rounded and tough.  She gestures with them – not big and broad, but concise actions, with fingers open and her palms stopping and starting conversation.

When she disguises her hands with fake nails, I am disoriented. But, I like the colors she splashes across the nubs. Green, blue, silver. Her hands stopped growing years ago.  I love to hold her hand; it is like holding a piece of child-sized serious life. They are strong and small, just like her.

Stewie was leaning into her and her bare fingernails were massaging from his neck to his tail. His lids were at half-mast. My daughter  was cooing into his ear.

When the kids were little we began a practice of shedding painful emotions by literally putting our hearts together. It would start with a hug. Little kids’ hugs are the best; totally committed, full body smashes. When our bodies were organized, heart beating against heart, we flung out an arm and visualized whatever had ambushed him or her moving down past the elbow, shooting over the wrist and then, with a good jiggle of the fingers, and a final flick off the fingertips, it was gone.

The hug usually lasted until the tears were gone or their little hearts stopped racing. My son took full advantage of these heart-to-hearts. My daughter was more guarded. But, I could scoop her in for one when I saw that her face looked crumpled or confused.

From a young age, she needed help to manage her emotions. Our heart-to-heart maneuver helped her dodge some bombs. But, by the time she was eight, she abandoned the ritual. She pushed away quickly from family hugs and eventually chose to rarely be touched. When her guard is down, I can stroke her back, slip an arm around her, or wrap her in a hug. But, when she feels vulnerable, her defenses go up and the barricade she builds around herself is sky-high and impenetrable.

The power of touch. Once my daughter started building these walls, we began to loose her. Now, years later, we are trying to figure out how to get her back.  I have been cautioned by years of being pushed away to read her before I gather her in for a hug. I can get behind her barriers other ways but I still have to be careful of touch.

My daughter is healing. She is tender and it often hurts to be her.

Yet, I trusted her to heal Stewie. No words, just contact. An exchange of energy. As real as any med but so much more powerful.

Stewie jumped up and demanded to be fed.

Uncategorized

Response To A Comment On My Blog

September 4th, 2010

So, Kris am I to understand right that your daughter is no longer on meds or in therapy?

Yes, my daughter has been off the heavy drug load which she had been put on most recently at Austen Riggs (and for years before that!). It has been eighteen months. The only drugs which she continues to have to take are the benzodiazepines. They are nearly impossible to get off. She no longer reaps any benefits from taking them – no lessening of anxiety. Now, she HAS to take them to ward off severe withdrawal symptoms. I can see when she has waited too long between doses. Her face drops into a flatness that I cannot describe and her body gets tense and it seems like even moving her head is painful. The spikes of anxiety are more violent than what she experienced when she was first prescribed the sedatives.

She experiences lingering withdrawal effects from years on psych meds that are very hard to deal with. Insomnia is at the top of the list right now. I check on her at 6 AM when I get up. Her eyes are sunken into her skull. She shakes her head. Sometimes she comes down for breakfast. Eventually, mid-morning she might drift off. She has tried: no electronics, reading, ambien, benadryl, back to the tv to bore herself to sleep, music, lying still in the darkness, breathing deeply – for hours. Beyond frustrating.

Also, she just had surgery on her foot and the narcotics that they gave her had no effect on the pain. Probably because her brain chemistry was so altered BY the psych meds. She was in howling, miserable pain and there was nothing that anyone could do.

The incisions are healing. But, the throbbing persists.

While she has been home, I have been feeding her regularly. I give her fish oil and vit D. When she goes back to New York after her foot has healed, she will visit a nutritionist who purportedly is very good at helping people get off of benzos. We’ll see.

My husband and I are astounded at the change in her. She still has mood swings, still sees things very black and white, works at splitting whoever is around and has a relationship with her body and self-image that is troubling. The dark clouds come but don’t last as long.

She is so much better than when she was drugged with psych meds. Her sense of humor and clear thinking is back. She is brilliant and softer somehow.

I am having joyful moments with her that I didn’t expect to have except in fleeting unexpected instances.

As to the question of therapy. My daughter was very burned by the psychiatric industry and for her that includes therapy in every form. She has done it ALL and does not want to revisit that realm – at least for right now.

Although I am “anti-psychiatry” (perhaps this is just another label that I want to avoid), I am not entirely anti-psychology. I believe that there are some cases where a compassionate listener can really help someone in need. I used the New York Times article (yesterday’s blog post) with the woman and her son as an example. The normal stresses of life are medicated away in the current system. This woman and her son might have been telling a very different story today if, when she first sought help, she had been funneled into federally funded/ state funded programs – childcare, job training, counseling – rather than directly to the pharmacy. (My guess is that she wasn’t paying for the meds her son was put on. Could the money spent on the drugs have been used differently?)

Being presented choices is the key to my mission.

There are, like you, many people who think that they have benefitted from drug therapy, but I would like to see alternatives offered when the first sign of mental health issues begins to interfere with daily life. Too often the only course of treatment is a prescription for a drug. After the brain has been altered by the chemicals in the prescribed medications, options might be offered but I feel it is too late at that point. The medications have by then had a chance to strip the individual of inspiration and motivation. I know that I saw this happen with my daughter. Anti-depressants and mood stabilizers were the first to deprive her of her drive to make art. When the rest of the arsenal was added, she quit reading (a life long passion) and rarely had the presence of mind to sit still in a movie theater.

Maybe if my daughter had been taught relaxation techniques early on… Maybe if she had been prescribed an exercise routine as they are doing in England (some doctors are writing prescriptions for gym memberships) when she quit team sports as a teen… Maybe if she had met with a nutritionist who did a full work up and discovered minerals that were depleted…

Maybe things wouldn’t have gotten so bad if these options had been present when my daughter first sought help. We will never know. But, I do know that I would like to change the course of another person’s life by telling the story that my daughter went through at the hands of the psychiatric industry.

Uncategorized